Commission launches knowledge-sharing platform on rare diseases
On 28 February 2019, the European Commission launched a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans living with a rare disease. The new European Platform on Rare Diseases Registration will bring data together which are currently scattered across Europe. This achievement will support the quality research that can enhance diagnosis and treatment outcomes. It will allow the creation of critical knowledge for a given disease, enabling research and supporting patients, health care providers and policy-makers.
The platform will be an important asset for the European Joint Programme on Rare Diseases which aims to establish a research and innovation pipeline for rapid translation of research results into clinical applications and uptake in healthcare. Through this programme, the platform resources can be used in future research projects and disseminated to a wider community of rare disease researchers, clinicians and patients in the EU and beyond.
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